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Posted on September 23rd, 2015 by admin

A SUPPORT group for people with a rare autoimmune blood disorder is set to finally open its first proper centre after 20 years.

The ITP Support Association, supporting patients with Immune Thrombocytopenia, was set up in 1995 by Shirley Watson after her son, Nev, was diagnosed at the age of nine.

Shirley said: “When this happened there was not anywhere to find out this information, so I created this association, based from my home, to give people a place to turn to when they had questions or concerns.”

For the past two decades it has offered information and support, ‘listening ear’ contact with nominated volunteers, held annual conventions featuring leading ITP specialists and more.

But as the charity has expanded, staff knew they needed to move out of Shirley’s home, and in January of last year they set about converting the derelict mission hall in Bolnhurst to make it their new HQ, and called it The Platelet Mission.

Shirley said: “This new centre is the next step for us, funded by members and built by volunteers, including my husband Frank.

“Is has been a lot of work, and I am so grateful to everyone who has supported us, including Axiam carpets who have donated our flooring, and to those who gave us our furniture.”

To learn more about Immune Thrombocytopenia visit their website on

Source: Bedfordshire News

 




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